CASE STUDY: Caregiver Role Strain: Ms. Sandra A.

 

 

 

 

Sandra, a 47-year-old divorced woman, received a diagnosis of stage 3 ovarian cancer 4 years ago, for which she had a total hysterectomy, bilateral salpingo- oophorectomy, omentectomy, lymphadenectomy, and tumor debulking followed by chemotherapy, consisting of cisplatin (Platinol), paclitaxel (Taxol), and doxorubicin (Adriamycin). She did well for 2 years and then moved back to her hometown near her family and underwent three more rounds of second- line chemotherapy. She accepted a less stressful job, bought a house, renewed old friendships, and became more involved with her two sisters and their families.

Sandra developed several complications, including metastasis to the lungs. Then she could no longer work, drive, or care for herself. She had been told by her oncologist that there was nothing else that could be done and that she should consider entering a hospice. She met her attorney and prepared an advance directive and completed her will. She decided to have hospice care at home and, with the help of her family, set up her first floor as a living and sleeping area. She was cared for by family members around the clock for approximately 3 days.

Sandra observed that she was tiring everyone out so much that they could not really enjoy each other’s company. At this time, she contacted the Visiting Nurse Association (VNA) to seek assistance. Her plan was to try to enjoy her family and friend’s visits. After assessment, the VNA nurse prioritized her problems to include fatigue and caregiver role strain. Other potential problem areas that may need to be incorporated into the care plan include anticipatory grieving and impaired comfort.

Reflective Questions

1. What are some of the stresses on Sandra’s middle-aged sisters and their families?

2. What resources are available to manage these stresses and support the sisters while

caring for their dying sister Sandra?

3. Describe Sandra’s feelings about dependency and loss of autonomy because she is

unable to do her own activities of daily living any longer

Sample Solution

Sandra’s middle-aged sisters and their families are facing a number of stresses as they care for their dying sister. These stresses can include:

  • Emotional stress: Caring for a dying loved one can be emotionally draining. The sisters may be feeling a range of emotions, such as sadness, grief, anger, and guilt. They may also be feeling stressed about the financial and logistical aspects of care.
  • Physical stress: Caring for a sick person can be physically demanding. The sisters may be feeling tired, overwhelmed, and even ill themselves. They may also be worried about their own health and well-being.
  • Financial stress: The cost of caring for a dying loved one can be significant. The sisters may be worried about how they will pay for medical bills, transportation, and other expenses.
  • Social stress: Caring for a dying loved one can take a toll on the sisters’ social lives. They may have less time for their own friends and family, and they may feel isolated from their community.

Resources to Manage Stress and Support the Sisters

There are a number of resources available to help the sisters manage the stress of caring for Sandra. These resources include:

  • Support groups: There are many support groups available for family members of people with cancer. These groups can provide a safe space for the sisters to share their experiences and get support from others who understand what they are going through.
  • Counseling: If the sisters are struggling to cope with the emotional stress of caring for Sandra, they may want to consider individual or family counseling. A counselor can help them to process their emotions and develop coping mechanisms.
  • Financial assistance: There are a number of financial assistance programs available to help families with the cost of caring for a dying loved one. The sisters can contact their local hospice or social services agency to learn more about these programs.
  • Social support: The sisters can also find support from their friends and family. Talking to people who care about them can help them to feel less alone and isolated.

Sandra’s Feelings About Dependency and Loss of Autonomy

Sandra is likely feeling a range of emotions about her dependency and loss of autonomy. She may be feeling angry, frustrated, and helpless. She may also be feeling sad, scared, and lonely. It is important to allow Sandra to express her feelings and to be there for her as she copes with this difficult time.

The VNA nurse can help Sandra to manage her feelings by providing her with emotional support and helping her to find resources that can help her to cope. The nurse can also help Sandra to set realistic goals for herself and to make the most of her remaining time.

It is also important to remember that Sandra is still a person, even though she is dying. She still has thoughts, feelings, and needs. It is important to treat her with respect and dignity, even as she becomes more dependent on others.

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