CASE STUDY: Caregiver Role Strain: Ms. Sandra A.
Sandra, a 47-year-old divorced woman, received a diagnosis of stage 3 ovarian cancer 4 years
ago, for which she had a total hysterectomy, bilateral salpingo- oophorectomy, omentectomy,
lymphadenectomy, and tumor debulking followed by chemotherapy, consisting of cisplatin
(Platinol), paclitaxel (Taxol), and doxorubicin (Adriamycin). She did well for 2 years and then
moved back to her hometown near her family and underwent three more rounds of secondline chemotherapy. She accepted a less stressful job, bought a house, renewed old friendships,
and became more involved with her two sisters and their families.
Sandra developed several complications, including metastasis to the lungs. Then she could no
longer work, drive, or care for herself. She had been told by her oncologist that there was
nothing else that could be done and that she should consider entering a hospice. She met her
attorney and prepared an advance directive and completed her will. She decided to have
hospice care at home and, with the help of her family, set up her first floor as a living and
sleeping area. She was cared for by family members around the clock for approximately 3 days.
Sandra observed that she was tiring everyone out so much that they could not really enjoy each
other’s company. At this time, she contacted the Visiting Nurse Association (VNA) to seek
assistance. Her plan was to try to enjoy her family and friend’s visits. After assessment, the VNA
nurse prioritized her problems to include fatigue and caregiver role strain. Other potential
problem areas that may need to be incorporated into the care plan include anticipatory grieving
and impaired comfort.
Reflective Questions
1. What are some of the stresses on Sandra’s middle-aged sisters and their families?
2. What resources are available to manage these stresses and support the sisters while
caring for their dying sister Sandra?
3. Describe Sandra’s feelings about dependency and loss of autonomy because she is
unable to do her own activities of daily living any longer
Caring for a terminally ill loved one like Sandra can impose significant stresses on her caregiving sisters and their families. These stressors can be classified into various categories:
Physical:
Emotional:
Financial:
Social:
Several resources are available to help manage stress and support caregivers while caring for Sandra:
Formal Support:
Informal Support:
Sandra likely experiences a range of emotions related to her dependency and loss of autonomy, including:
It is important for caregivers to be sensitive to these emotions and offer Sandra support and understanding. They can encourage her to express her feelings, validate her experiences, and help her find ways to maintain a sense of control over her life as much as possible.
Additional Resources:
Conclusion:
Caring for a terminally ill loved one like Sandra can be a challenging and emotionally demanding experience. By understanding the potential stresses on caregivers and utilizing available resources, Sandra’s sisters and family can better manage their own stress and provide the necessary support and care for Sandra during this difficult time. It is also crucial to acknowledge and support Sandra’s feelings about her dependency and loss of autonomy, allowing her to express her emotions and find